Should I be angry?

Little Miss W has gone out with her Dad to visit her Grandparents, so I thought I would grab an opportunity to avoid doing any housework!

I want to start by saying a massive thank you to everyone that has read this blog.  So many have taken the time to comment, 'like' my status or to e-mail me.  To be honest I am overwhelmed and really touched.  I worry when writing this that I will choose the wrong words and may cause offence...I am no expert on HD and only know it from my limited experience.  I know there are many of you who have been on this journey a lot longer than I have.  So please forgive me if I get it wrong.  Mr W and I also like to deal with things with sense of humour...again hope this does not offend.  It is just how we deal with stuff. 

I have reflected on one of my contacts who seem to suggest that we should feel angry about stuff.  I am not sure why but I really don't feel angry.  I also don't get the feeling that those that I have connected with, in the HD Community, feel anger.  I wonder why this is.  Yes, occasionally someone has made a stupid comment.  But do you know what - people can be stupid!! I do get frustrated by some people's lack of understanding - but why should they understand - was I any different to them before this happened to us?  In the main, people have been overwhelmingly kind and supportive... taking time to see the real Mr W behind the illness.  Families have been supportive...strengthening relationships that were previously on occasion fragile. Some old friends have disappeared - actually only one - I don't even feel angry about that any more.  We have lost one friend but made so many new - dare I say - better friendships - it no longer matters.  Existing friendships have strengthened - people have shown me how much they care - even walking up mountains with me! (way beyond the call of duty).

Some health professionals have been idiots - but we ditched them and found better ones.  In fact an amazing team who are always there for us - and help us laugh along the way.

Of course I feel sad.  Sad about what could of been. Sad about the effect on my children (but am hoping and praying every day that they will cure this thing). If they do ...my children will be all the better off for learning at an early age what is important in life.

So why do we not feel more angry?  Well within the HD community, time is not on our side.   It becomes precious, you don't sweat the small stuff, you learn to appreciate what is important.  I think I just don't have time to feel angry.  What do you think?