So, why do a blog? I can honestly say I have no idea other than it seems like a good idea and I can't afford therapy. In December 2004 my husband was diagnosed with a progressive Neurological condition called Huntington's Disease. Prior to the day we met with the Neurologist, and they took blood for the relevant blood test, I had never heard of this disease. The diagnosis can only be likened to waking up from a lovely dream and your life becoming a living nightmare. My daughter was 3 months old when we received Mr W's diagnosis. Our children are now 3 and 7.
So, I guess I have stuff I want to talk about.
Whilst life has been a bit of a roller coaster since diagnosis it has not all been bad. In fact there has been a lot of good. One of the main reasons that I wanted to blog was that Mr W is going to start a Phase II clinical trial this month. I though it might be useful to share our experiences so that others can decide if this is something they may like to get involved in. I also want to share, that life, living with HD (or I guess in its shadows) ain't all bad... for someone just diagnosed that can be difficult to believe I know. It has taken me three years and a lOT of those lovely happy pills to get to this point!
